{"id":1309,"date":"2023-11-02T00:28:17","date_gmt":"2023-11-01T23:28:17","guid":{"rendered":"https:\/\/xfragil.cat\/?page_id=1309"},"modified":"2023-12-22T06:56:10","modified_gmt":"2023-12-22T05:56:10","slug":"preguntes-frequents","status":"publish","type":"page","link":"https:\/\/xfragil.cat\/ca\/preguntes-frequents\/","title":{"rendered":"Preguntes freq\u00fcents"},"content":{"rendered":"\t\t
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Preguntes freq\u00fcents<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Portada<\/a><\/span><\/span><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tQui pot ser soci o s\u00f2cia de l\u2019Associaci\u00f3?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Qualsevol persona amb una voluntat sincera d’aportar i implicar-se en la millora de la qualitat de vida de les persones afectades per la S\u00edndrome X Fr\u00e0gil pot associar-se.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tNo soc familiar de cap persona amb X Fr\u00e0gil per\u00f2 vull col\u00b7laborar. Qu\u00e8 puc fer?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Doncs estem encantats i encantades que vulguis col\u00b7laborar i per aix\u00f2 et proposem diverses opcions:<\/p>

Pots destinar part del teu temps lliure a fer voluntariat a l\u2019Associaci\u00f3, et convidem que visitis l\u2019apartat Voluntariat per saber com fer-ho!<\/a><\/p>

Pots col\u00b7laborar a trav\u00e9s d\u2019un donatiu, fes clic aqu\u00ed per saber-ne m\u00e9s detalls<\/a><\/p>

O pots associar-te, fes clic aqu\u00ed per con\u00e8ixer com<\/a>.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tTinc un familiar amb X Fr\u00e0gil, crec que \u00e9s una bona idea associar-me per\u00f2 vivim fora de Catalunya. Puc fer-me\u2019n soci i participar de les propostes online?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

S\u00ed, pots formar part de l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil, et donarem tot el suport que ens sigui possible i podr\u00e0s com a soci de ple dret, fer \u00fas de tots els seveis i programes en la modalitat online que oferim. Disposem de tallers en format online, Servei d\u2019Assessorament Familiar, Assessorament a professionals que tenen contacte amb persones amb X Fr\u00e0gil, Grup d\u2019Ajuda M\u00fatua, Grup d\u2019\u00e0vies i avis\u2026 consulta tots els serveis que oferim aqu\u00ed<\/a><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tAcaben de diagnosticar amb X Fr\u00e0fil al meu fill o a la meva filla. Qu\u00e8 faig?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Posa\u2019t en contacte amb nosaltres a info@xfragil.cat<\/a> , concretarem cita per una trucada i t\u2019ajudarem en tot all\u00f2 que estigui al nostre abast.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tSoc professional de l\u2019educaci\u00f3 i entre l\u2019alumnat hi ha una persona amb S\u00edndrome X Fr\u00e0gil. Teniu alguna formaci\u00f3 per a professionals al voltant de la s\u00edndrome?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

A l\u2019Associaci\u00f3 tamb\u00e9 ens adrecem a professionals de l\u2019educaci\u00f3, per aix\u00f2 disposem d\u2019eines per poder-te orientar. Posa\u2019t en contacte amb nosaltres a info@xfragil.cat<\/a>, concretarem una reuni\u00f3 i eines. Tamb\u00e9 oferim formacions a tot el claustre de professors per con\u00e8ixer de m\u00e9s a prop la S\u00edndrome X Fr\u00e0gil i la modificaci\u00f3 de conducta.<\/p>

A m\u00e9s, cada dos anys organitzem de manera regular una formaci\u00f3 espec\u00edfica per a professionals. Perqu\u00e8 com m\u00e9s divulgaci\u00f3 i coneixement, m\u00e9s inclusi\u00f3 i qualitat de vida.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Qu\u00e8 oferim<\/a><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Qui pot ser soci o s\u00f2cia de l\u2019Associaci\u00f3? Qualsevol persona amb una voluntat sincera d\u2019aportar i implicar-se en la millora de la qualitat de vida de les persones afectades per la S\u00edndrome X Fr\u00e0gil pot associar-se. No soc familiar de cap persona amb X Fr\u00e0gil per\u00f2 vull col\u00b7laborar. Qu\u00e8 puc fer? Doncs estem encantats i […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-1309","page","type-page","status-publish","hentry"],"yoast_head":"\nFAQs S\u00edndrome X Fr\u00e0gil<\/title>\n<meta name=\"description\" content=\"Preguntes freq\u00fcents sobre la S\u00edndrome X Fr\u00e0gil i l'Associaci\u00f3: formes de col\u00b7laborar, a qui adre\u00e7ar-te despr\u00e9s del diagn\u00f2stic...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xfragil.cat\/ca\/preguntes-frequents\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FAQs S\u00edndrome X Fr\u00e0gil\" \/>\n<meta property=\"og:description\" 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