{"id":6279,"date":"2021-06-01T13:03:06","date_gmt":"2021-06-01T11:03:06","guid":{"rendered":"https:\/\/xfragil.cat\/un-brindis-per-nosaltres\/"},"modified":"2021-06-01T13:03:06","modified_gmt":"2021-06-01T11:03:06","slug":"un-brindis-per-nosaltres","status":"publish","type":"post","link":"https:\/\/xfragil.cat\/ca\/un-brindis-per-nosaltres\/","title":{"rendered":"Un brindis per nosaltres!"},"content":{"rendered":"<p>Algunes de les fam\u00edlies que formem part de l&#8217;Associaci\u00f3 ens vam trobar virtualment dissabte. Tot i que enguany no hem pogut celebrar el nostre tradicional dinar de germanor, ens vam voler reunir igualment per compartir viv\u00e8ncies i caliu, i brindar per nosaltres, per totes les fam\u00edlies que formem part de l&#8217;entitat i que lluitem dia a dia per millorar la qualitat de vida de les persones amb la S\u00edndrome X Fr\u00e0gil.<\/p>\n<p>Si no vas poder assistir-hi, volem compartir amb tu igualment el v\u00eddeo que l&#8217;equip t\u00e8cnic va preparar amb tota l&#8217;estima per a l&#8217;ocasi\u00f3:<\/p>\n<p><iframe title=\"SOM X FR\u00c0GIL\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/RgRLdiH0XaY?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p>I d&#8217;altra banda, el v\u00eddeo en qu\u00e8 la Junta Directiva es va donar a con\u00e8ixer una mica m\u00e9s:<\/p>\n<p><iframe title=\"Coneixes la Junta Directiva?\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/MlEQeGu0ahg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p>La nostra presidenta, L\u00eddia M\u00e9ndez, va aprofitar la trobada per donar les gr\u00e0cies a totes i tots els socis en general per continuar un any m\u00e9s al costat de l\u2019Associaci\u00f3 i, especialment a la Noem\u00ed Ma\u00f1as, que aquest any ha elaborat 194 sabons en forma de rosa per vendre\u2019ls per Sant Jordi a benefici de l\u2019Associaci\u00f3. Tamb\u00e9 al Jose Serrano, que va presentar a la seva empresa la nostra entitat i vam estat escollits per rebre un donatiu. A La Raquel Serra, que sempre lluita per la visibilitat de la SXF i contacta amb persones conegudes per fer difusi\u00f3 de la S\u00edndrome. I al Narc\u00eds Estanyol perqu\u00e8 sempre ens d\u00f3na el seu suport altruistament davant les dificultats inform\u00e0tiques.<\/p>\n<p><strong>GAM AMB EDUARDO BRIGNANI<\/strong><\/p>\n<p>Abans d&#8217;aquest brindis l\u00fadic, el psic\u00f2leg Eduardo Brignani va acompanyar les fam\u00edlies que es van inscriure al Grup d&#8217;Ajuda M\u00fatua (GAM). Vam crear un espai per expressar els nostres sentiments, inquietuds i testimonis. Gr\u00e0cies, Eduardo, per posar-nos-ho sempre tan f\u00e0cil!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Algunes de les fam\u00edlies que formem part de l&#8217;Associaci\u00f3 ens vam trobar virtualment dissabte. Tot i que enguany no hem pogut celebrar el nostre tradicional dinar de germanor, ens vam voler reunir igualment per compartir viv\u00e8ncies i caliu, i brindar per nosaltres, per totes les fam\u00edlies que formem part de l&#8217;entitat i que lluitem dia [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":6280,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10,18],"tags":[],"class_list":["post-6279","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticies","category-sense-categoria"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Un brindis per nosaltres! - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xfragil.cat\/ca\/un-brindis-per-nosaltres\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Un brindis per nosaltres! - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"og:description\" content=\"Algunes de les fam\u00edlies que formem part de l&#8217;Associaci\u00f3 ens vam trobar virtualment dissabte. 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