{"id":8691,"date":"2025-10-17T12:07:18","date_gmt":"2025-10-17T10:07:18","guid":{"rendered":"https:\/\/xfragil.cat\/?p=8691"},"modified":"2025-10-17T12:07:18","modified_gmt":"2025-10-17T10:07:18","slug":"la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf","status":"publish","type":"post","link":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/","title":{"rendered":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF"},"content":{"rendered":"<p>Durant aquests dies, la <strong>S\u00edndrome X Fr\u00e0gil<\/strong> ha estat present als mitjans de comunicaci\u00f3 gr\u00e0cies a la trobada que vam organitzar des de l\u2019<strong>Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil<\/strong> (ACSXF).<\/p>\n<p>L\u2019acte, celebrat amb motiu del 30\u00e8 aniversari de l\u2019Associaci\u00f3, va tenir com a objectiu visibilitzar aquesta condici\u00f3 gen\u00e8tica i posar en valor la tasca que, des de fa tres d\u00e8cades, duem a terme per donar suport a les fam\u00edlies i fomentar la recerca i la inclusi\u00f3 social. Un espai per compartir experi\u00e8ncies i fer sentir la nostra veu.<\/p>\n<p>Durant la trobada, vam comptar amb la participaci\u00f3 de professionals i fam\u00edlies que conviuen amb la S\u00edndrome X Fr\u00e0gil, que van compartir la seva experi\u00e8ncia i coneixement per ajudar a entendre millor la realitat d\u2019aquesta condici\u00f3.<\/p>\n<p>Entre els participants hi havia:<\/p>\n<ul>\n<li><strong>Dra.<\/strong> <strong>Ana Roche<\/strong>, neuropediatra de l\u2019Hospital Parc Taul\u00ed de Sabadell<\/li>\n<li><strong>Sara Mar\u00edn<\/strong>, mare de l\u2019Arnau amb SXF<\/li>\n<li><strong>Marc Iglesias<\/strong>, psic\u00f2leg de l\u2019ACSXF<\/li>\n<li><strong>Lidia M\u00e9ndez<\/strong>, mare de l\u2019Adri\u00e0 amb SXF i presidenta de l\u2019ACSXF<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>A tots ells, i a totes les fam\u00edlies que ens acompanyen dia a dia, els volem agrair la seva implicaci\u00f3 i la seva veu valenta.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-medium wp-image-8696\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/4-ok-300x225.jpeg\" alt=\"Mitjans de comunicaci\u00f3 ACSXF 2025\" width=\"300\" height=\"225\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/4-ok-300x225.jpeg 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/4-ok-768x576.jpeg 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/4-ok.jpeg 850w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Ha estat un bon punt de partida per donar un pas m\u00e9s i fer-nos m\u00e9s visibles.\u00a0 Hem aconseguit una molt bona acollida entre els mitjans de comunicaci\u00f3. Hem estat presents a RTVE Catalunya, al Canal 24 hores, a BETEV\u00c9, i tamb\u00e9 a diversos espais de r\u00e0dio com l\u00b4informatiu de la COPE a Catalunya i La Xarxa, al programa <em>Connectats<\/em>, entre d&#8217;altres.<\/p>\n<p>A trav\u00e9s d\u2019aquests canals, hem pogut fer arribar el nostre missatge: la import\u00e0ncia de con\u00e8ixer la S\u00edndrome X Fr\u00e0gil, donar suport a la recerca i treballar plegats per una societat m\u00e9s inclusiva.\u00a0 Aqu\u00ed pots accedir alguns d\u00b4ells:<\/p>\n<p><a href=\"https:\/\/www.rtve.es\/play\/videos\/linformatiu\/reclamen-mes-recursos-per-les-terapies-sindrome-fragil\/16765436\/\"><img decoding=\"async\" class=\"alignnone size-medium wp-image-8707\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/RTVE-300x175.png\" alt=\"\" width=\"300\" height=\"175\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/RTVE-300x175.png 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/RTVE.png 747w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p><a href=\"https:\/\/beteve.cat\/societat\/sindrome-x-fragil-malaltia-hereditaria-invisibilitada\/\"><img decoding=\"async\" class=\"alignnone wp-image-8709\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/beteve-300x125.png\" alt=\"\" width=\"250\" height=\"104\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/beteve-300x125.png 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/beteve.png 681w\" sizes=\"(max-width: 250px) 100vw, 250px\" \/><\/a><\/p>\n<p><a href=\"https:\/\/www.rtve.es\/play\/videos\/informativo-24h\/20h-10-10-25\/16766154\/\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-8711\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/24H-300x261.png\" alt=\"\" width=\"250\" height=\"218\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/24H-300x261.png 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/24H-768x669.png 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/24H.png 774w\" sizes=\"(max-width: 250px) 100vw, 250px\" \/><\/a><\/p>\n<p>(Podeu veure&#8217;l del minut 23:08 al 24:58)<\/p>\n<p><a href=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/251007_Cadena-Cope.mp3\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-8715\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Logo-cope-300x169.jpg\" alt=\"\" width=\"250\" height=\"141\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Logo-cope-300x169.jpg 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Logo-cope-1024x576.jpg 1024w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Logo-cope-768x432.jpg 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Logo-cope.jpg 1280w\" sizes=\"(max-width: 250px) 100vw, 250px\" \/><\/a><\/p>\n<audio class=\"wp-audio-shortcode\" id=\"audio-8691-1\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/251007_Cadena-Cope.mp3?_=1\" \/><a href=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/251007_Cadena-Cope.mp3\">https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/251007_Cadena-Cope.mp3<\/a><\/audio>\n<p><a href=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/251007_Entrevista-Connectats-Lidia-Mendez-ACSXF.mp3\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-8727\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Connectats-300x300.png\" alt=\"\" width=\"250\" height=\"249\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Connectats-300x300.png 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Connectats-150x150.png 150w, https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/Connectats.png 303w\" sizes=\"(max-width: 250px) 100vw, 250px\" \/><\/a><\/p>\n<p><strong>30 anys donant veu a les fam\u00edlies<\/strong><\/p>\n<p>Aquest 2025 \u00e9s un any molt especial per a nosaltres. Celebrem 30 anys d\u2019hist\u00f2ria, comprom\u00eds i esperan\u00e7a, treballant per millorar la qualitat de vida de les persones amb S\u00edndrome X Fr\u00e0gil i les seves fam\u00edlies.<\/p>\n<p>Amb aquesta iniciativa hem tingut una nova oportunitat per fer visible la nostra tasca i reafirmar el nostre comprom\u00eds amb la inclusi\u00f3, la sensibilitzaci\u00f3 i la recerca.<\/p>\n<p>Gr\u00e0cies als mitjans de comunicaci\u00f3 per escoltar-nos i ajudar-nos a amplificar la veu de totes les fam\u00edlies que formen part de l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil.<\/p>\n<p>Seguim treballant junts per un futur amb m\u00e9s comprensi\u00f3, suport i oportunitats.<\/p>\n<p>#S\u00edndromeXFr\u00e0gil #ACSXF #30AnysACSXF #Inclusi\u00f3 #Visibilitat #Recerca #Fam\u00edliesSXF #FragileX #Comunicaci\u00f3Social #DonantVeu<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Durant aquests dies, la S\u00edndrome X Fr\u00e0gil ha estat present als mitjans de comunicaci\u00f3 gr\u00e0cies a la trobada que vam organitzar des de l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil (ACSXF). L\u2019acte, celebrat amb motiu del 30\u00e8 aniversari de l\u2019Associaci\u00f3, va tenir com a objectiu visibilitzar aquesta condici\u00f3 gen\u00e8tica i posar en valor la tasca que, des [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":8693,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[71,64,76,77,74,75,73,70,72,45],"class_list":["post-8691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticies","tag-30anysacsxf","tag-acsxf","tag-comunicaciosocial","tag-donantveu","tag-familiessxf","tag-fragilex","tag-recerca","tag-sindromexfragil","tag-visibilitat","tag-inclusio"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"og:description\" content=\"Durant aquests dies, la S\u00edndrome X Fr\u00e0gil ha estat present als mitjans de comunicaci\u00f3 gr\u00e0cies a la trobada que vam organitzar des de l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil (ACSXF). L\u2019acte, celebrat amb motiu del 30\u00e8 aniversari de l\u2019Associaci\u00f3, va tenir com a objectiu visibilitzar aquesta condici\u00f3 gen\u00e8tica i posar en valor la tasca que, des [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/\" \/>\n<meta property=\"og:site_name\" content=\"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"article:published_time\" content=\"2025-10-17T10:07:18+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"850\" \/>\n\t<meta property=\"og:image:height\" content=\"637\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Comunicaci\u00f3 Xfr\u00e0gil\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrit per\" \/>\n\t<meta name=\"twitter:data1\" content=\"Comunicaci\u00f3 Xfr\u00e0gil\" \/>\n\t<meta name=\"twitter:label2\" content=\"Temps estimat de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minuts\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/\"},\"author\":{\"name\":\"Comunicaci\u00f3 Xfr\u00e0gil\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#\\\/schema\\\/person\\\/494ce8b612a6bb018b5207562820ae0a\"},\"headline\":\"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF\",\"datePublished\":\"2025-10-17T10:07:18+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/\"},\"wordCount\":488,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2025\\\/10\\\/1-bis.jpeg\",\"keywords\":[\"#30AnysACSXF\",\"#ACSXF\",\"#Comunicaci\u00f3Social\",\"#DonantVeu\",\"#Fam\u00edliesSXF\",\"#FragileX\",\"#Recerca\",\"#S\u00edndromeXFr\u00e0gil\",\"#Visibilitat\",\"Inclusi\u00f3\"],\"articleSection\":[\"noticies\"],\"inLanguage\":\"ca\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/\",\"name\":\"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2025\\\/10\\\/1-bis.jpeg\",\"datePublished\":\"2025-10-17T10:07:18+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#breadcrumb\"},\"inLanguage\":\"ca\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"ca\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#primaryimage\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2025\\\/10\\\/1-bis.jpeg\",\"contentUrl\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2025\\\/10\\\/1-bis.jpeg\",\"width\":850,\"height\":637,\"caption\":\"Mitjans de comunicaci\u00f3 ACSXF Oct 2025\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#website\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/\",\"name\":\"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"ca\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#organization\",\"name\":\"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ca\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2023\\\/10\\\/xfragil-logo.svg\",\"contentUrl\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2023\\\/10\\\/xfragil-logo.svg\",\"width\":500,\"height\":210,\"caption\":\"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\"},\"image\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#\\\/schema\\\/logo\\\/image\\\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/ca\\\/#\\\/schema\\\/person\\\/494ce8b612a6bb018b5207562820ae0a\",\"name\":\"Comunicaci\u00f3 Xfr\u00e0gil\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ca\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g\",\"caption\":\"Comunicaci\u00f3 Xfr\u00e0gil\"},\"sameAs\":[\"https:\\\/\\\/xfragil.cat\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/","og_locale":"ca_ES","og_type":"article","og_title":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","og_description":"Durant aquests dies, la S\u00edndrome X Fr\u00e0gil ha estat present als mitjans de comunicaci\u00f3 gr\u00e0cies a la trobada que vam organitzar des de l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil (ACSXF). L\u2019acte, celebrat amb motiu del 30\u00e8 aniversari de l\u2019Associaci\u00f3, va tenir com a objectiu visibilitzar aquesta condici\u00f3 gen\u00e8tica i posar en valor la tasca que, des [&hellip;]","og_url":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/","og_site_name":"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","article_published_time":"2025-10-17T10:07:18+00:00","og_image":[{"width":850,"height":637,"url":"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg","type":"image\/jpeg"}],"author":"Comunicaci\u00f3 Xfr\u00e0gil","twitter_card":"summary_large_image","twitter_misc":{"Escrit per":"Comunicaci\u00f3 Xfr\u00e0gil","Temps estimat de lectura":"4 minuts"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#article","isPartOf":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/"},"author":{"name":"Comunicaci\u00f3 Xfr\u00e0gil","@id":"https:\/\/xfragil.cat\/ca\/#\/schema\/person\/494ce8b612a6bb018b5207562820ae0a"},"headline":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF","datePublished":"2025-10-17T10:07:18+00:00","mainEntityOfPage":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/"},"wordCount":488,"commentCount":0,"publisher":{"@id":"https:\/\/xfragil.cat\/ca\/#organization"},"image":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#primaryimage"},"thumbnailUrl":"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg","keywords":["#30AnysACSXF","#ACSXF","#Comunicaci\u00f3Social","#DonantVeu","#Fam\u00edliesSXF","#FragileX","#Recerca","#S\u00edndromeXFr\u00e0gil","#Visibilitat","Inclusi\u00f3"],"articleSection":["noticies"],"inLanguage":"ca","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/","url":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/","name":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","isPartOf":{"@id":"https:\/\/xfragil.cat\/ca\/#website"},"primaryImageOfPage":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#primaryimage"},"image":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#primaryimage"},"thumbnailUrl":"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg","datePublished":"2025-10-17T10:07:18+00:00","breadcrumb":{"@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#breadcrumb"},"inLanguage":"ca","potentialAction":[{"@type":"ReadAction","target":["https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/"]}]},{"@type":"ImageObject","inLanguage":"ca","@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#primaryimage","url":"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg","contentUrl":"https:\/\/xfragil.cat\/wp-content\/uploads\/2025\/10\/1-bis.jpeg","width":850,"height":637,"caption":"Mitjans de comunicaci\u00f3 ACSXF Oct 2025"},{"@type":"BreadcrumbList","@id":"https:\/\/xfragil.cat\/ca\/la-sindrome-x-fragil-protagonista-als-mitjans-de-comunicacio-en-el-30e-aniversari-de-lacsxf\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/xfragil.cat\/ca\/"},{"@type":"ListItem","position":2,"name":"La S\u00edndrome X Fr\u00e0gil, protagonista als mitjans de comunicaci\u00f3 en el 30\u00e8 aniversari de l\u2019ACSXF"}]},{"@type":"WebSite","@id":"https:\/\/xfragil.cat\/ca\/#website","url":"https:\/\/xfragil.cat\/ca\/","name":"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","description":"","publisher":{"@id":"https:\/\/xfragil.cat\/ca\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/xfragil.cat\/ca\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"ca"},{"@type":"Organization","@id":"https:\/\/xfragil.cat\/ca\/#organization","name":"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya","url":"https:\/\/xfragil.cat\/ca\/","logo":{"@type":"ImageObject","inLanguage":"ca","@id":"https:\/\/xfragil.cat\/ca\/#\/schema\/logo\/image\/","url":"https:\/\/xfragil.cat\/wp-content\/uploads\/2023\/10\/xfragil-logo.svg","contentUrl":"https:\/\/xfragil.cat\/wp-content\/uploads\/2023\/10\/xfragil-logo.svg","width":500,"height":210,"caption":"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l'Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya"},"image":{"@id":"https:\/\/xfragil.cat\/ca\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/xfragil.cat\/ca\/#\/schema\/person\/494ce8b612a6bb018b5207562820ae0a","name":"Comunicaci\u00f3 Xfr\u00e0gil","image":{"@type":"ImageObject","inLanguage":"ca","@id":"https:\/\/secure.gravatar.com\/avatar\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/7385d5f15648f35653fd1892c7052b9faaf2d2862d3703a9bdd2e24594dfa427?s=96&d=mm&r=g","caption":"Comunicaci\u00f3 Xfr\u00e0gil"},"sameAs":["https:\/\/xfragil.cat"]}]}},"_links":{"self":[{"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/posts\/8691","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/comments?post=8691"}],"version-history":[{"count":18,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/posts\/8691\/revisions"}],"predecessor-version":[{"id":8731,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/posts\/8691\/revisions\/8731"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/media\/8693"}],"wp:attachment":[{"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/media?parent=8691"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/categories?post=8691"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/xfragil.cat\/ca\/wp-json\/wp\/v2\/tags?post=8691"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}