{"id":9222,"date":"2026-04-27T17:52:04","date_gmt":"2026-04-27T15:52:04","guid":{"rendered":"https:\/\/xfragil.cat\/?p=9222"},"modified":"2026-04-27T17:56:37","modified_gmt":"2026-04-27T15:56:37","slug":"lassociacio-catalana-sindrome-x-fragil-participa-en-la-primera-jornada-cientifica-de-xwhin-per-avancar-en-la-salut-de-les-dones","status":"publish","type":"post","link":"https:\/\/xfragil.cat\/ca\/lassociacio-catalana-sindrome-x-fragil-participa-en-la-primera-jornada-cientifica-de-xwhin-per-avancar-en-la-salut-de-les-dones\/","title":{"rendered":"L\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil participa en la primera jornada cient\u00edfica de XWHIN per avan\u00e7ar en la salut de les dones"},"content":{"rendered":"<p>El passat 24 d\u2019abril, l\u2019<strong>Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil<\/strong> (ACSXF), representada per la seva presidenta, Lidia Mendez, va participar en la presentaci\u00f3 oficial de <strong>XWHIN (Women\u2019s Health Innovation Network),<\/strong> la xarxa catalana d\u2019innovaci\u00f3 en salut de les dones liderada per l\u2019Institut de Recerca Sant Pau.<\/p>\n<p>La jornada, celebrada al Recinte Modernista de Sant Pau en el marc de la 4a Jornada Cient\u00edfica \u201cEntre Dones\u201d, va reunir m\u00e9s de 80 professionals, 47 grups de recerca i 24 entitats compromeses amb la transformaci\u00f3 de la salut femenina des d\u2019una mirada m\u00e9s equitativa, integradora i innovadora.<\/p>\n<p>XWHIN neix amb una missi\u00f3 clara: impulsar la innovaci\u00f3 en salut de les dones incorporant de manera transversal la perspectiva de sexe i g\u00e8nere en la recerca, la pr\u00e0ctica cl\u00ednica i el desenvolupament de noves solucions. Aquesta mirada \u00e9s essencial per reduir desigualtats, millorar diagn\u00f2stics i tractaments, i generar coneixement \u00fatil amb impacte real en la vida de les dones.<\/p>\n<p>Durant la jornada, persones expertes de diferents \u00e0mbits com la salut cardiovascular, la salut mental, la salut reproductiva, l\u2019epidemiologia o l\u2019atenci\u00f3 prim\u00e0ria van compartir els principals reptes actuals i van coincidir en la necessitat urgent d\u2019incorporar aquesta perspectiva des de les primeres fases de la recerca fins a la seva aplicaci\u00f3 cl\u00ednica.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone size-medium wp-image-9231\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/3-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/3-300x200.jpg 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/3-768x511.jpg 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/3.jpg 799w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Tamb\u00e9 es van dur a terme din\u00e0miques de cocreaci\u00f3 i treball col\u00b7laboratiu per identificar necessitats, oportunitats i l\u00ednies d\u2019acci\u00f3 priorit\u00e0ries que ajudaran a definir el futur pla estrat\u00e8gic de la xarxa.<\/p>\n<p><img decoding=\"async\" class=\"alignnone size-medium wp-image-9227\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/4-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/4-300x200.jpg 300w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/4-768x511.jpg 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/4.jpg 799w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Des de l\u2019ACSXF, valorem molt positivament formar part d\u2019aquest espai de connexi\u00f3 entre recerca, innovaci\u00f3, pr\u00e0ctica cl\u00ednica i entitats de pacients. Incorporar la perspectiva de sexe i g\u00e8nere tamb\u00e9 \u00e9s fonamental en l\u2019abordatge de les malalties minorit\u00e0ries i en l\u2019atenci\u00f3 a les fam\u00edlies, especialment per afavorir la visibilitat de les dones amb permutaci\u00f3 oferint coneixement i suport integral.<\/p>\n<p><img decoding=\"async\" class=\"alignnone size-medium wp-image-9223\" src=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/1-1-225x300.jpeg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/1-1-225x300.jpeg 225w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/1-1-768x1024.jpeg 768w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/1-1-1152x1536.jpeg 1152w, https:\/\/xfragil.cat\/wp-content\/uploads\/2026\/04\/1-1.jpeg 1200w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/p>\n<p>XWHIN representa una oportunitat per generar aliances, compartir coneixement i contribuir a una innovaci\u00f3 m\u00e9s precisa, inclusiva i adaptada a la diversitat de la poblaci\u00f3.<\/p>\n<p>Canviem la mirada. Transformem la salut de les dones.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El passat 24 d\u2019abril, l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil (ACSXF), representada per la seva presidenta, Lidia Mendez, va participar en la presentaci\u00f3 oficial de XWHIN (Women\u2019s Health Innovation Network), la xarxa catalana d\u2019innovaci\u00f3 en salut de les dones liderada per l\u2019Institut de Recerca Sant Pau. La jornada, celebrada al Recinte Modernista de Sant Pau en [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":9225,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[64,90,70,89,49],"class_list":["post-9222","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticies","tag-acsxf","tag-salutdelesdones","tag-sindromexfragil","tag-xwhin","tag-sxf"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>L\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil participa en la primera jornada cient\u00edfica de XWHIN per avan\u00e7ar en la salut de les dones - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xfragil.cat\/ca\/lassociacio-catalana-sindrome-x-fragil-participa-en-la-primera-jornada-cientifica-de-xwhin-per-avancar-en-la-salut-de-les-dones\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil participa en la primera jornada cient\u00edfica de XWHIN per avan\u00e7ar en la salut de les dones - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"og:description\" content=\"El passat 24 d\u2019abril, l\u2019Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil (ACSXF), representada per la seva presidenta, Lidia Mendez, va participar en la presentaci\u00f3 oficial de XWHIN (Women\u2019s Health Innovation Network), la xarxa catalana d\u2019innovaci\u00f3 en salut de les dones liderada per l\u2019Institut de Recerca Sant Pau. 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