{"id":6504,"date":"2021-06-01T13:11:44","date_gmt":"2021-06-01T11:11:44","guid":{"rendered":"https:\/\/xfragil.cat\/un-brindis-por-nosotros\/"},"modified":"2021-06-01T13:11:44","modified_gmt":"2021-06-01T11:11:44","slug":"un-brindis-por-nosotros","status":"publish","type":"post","link":"https:\/\/xfragil.cat\/es\/un-brindis-por-nosotros\/","title":{"rendered":"\u00a1Un brindis por nosotros!"},"content":{"rendered":"<p>Algunas de las familias que formamos parte de la Asociaci\u00f3n nos encontramos virtualmente el s\u00e1bado. Aunque este a\u00f1o no hemos podido celebrar nuestra tradicional comida de familias, nos quisimos reunir igualmente para compartir vivencias y estima, y brindar por nosotros, por todas las familias que formamos parte de la entidad y que luchamos d\u00eda a d\u00eda para mejorar la calidad de vida de las personas con S\u00edndrome X Fr\u00e1gil.<\/p>\n<p>Si no pudiste asistir, queremos compartir contigo igualmente el v\u00eddeo que el equipo t\u00e9cnico prepar\u00f3 con todo el cari\u00f1o para la ocasi\u00f3n:<\/p>\n<p><iframe title=\"SOM X FR\u00c0GIL\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/RgRLdiH0XaY?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p>Y por otro lado, el v\u00eddeo en el que la Junta Directiva se dio a conocer un poco m\u00e1s:<\/p>\n<p><iframe title=\"Coneixes la Junta Directiva?\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/MlEQeGu0ahg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/p>\n<p>Nuestra presidenta, L\u00eddia M\u00e9ndez, aprovech\u00f3 el encuentro para dar las gracias a todas y todos los socios en general para continuar un a\u00f1o m\u00e1s junto a la Asociaci\u00f3n y, especialmente a Noem\u00ed Ma\u00f1as, que este a\u00f1o ha elaborado 194 jabones en forma de rosa para venderlos por Sant Jordi a beneficio de la Asociaci\u00f3n. Tambi\u00e9n a Jose Serrano, que present\u00f3 en su empresa a nuestra entidad y fuimos elegidos para recibir un donativo. A Raquel Serra, que siempre lucha por la visibilidad del SXF y contacta con personas conocidas para hacer difusi\u00f3n del S\u00edndrome. Y a Narc\u00eds Estanyol porque siempre nos da su apoyo altruistamente ante las dificultades inform\u00e1ticas.<\/p>\n<p><strong>GAM CON EDUARDO BRIGNANI<\/strong><\/p>\n<p>Antes de este brindis l\u00fadico, el psic\u00f3logo Eduardo Brignani acompa\u00f1\u00f3 a las familias que se inscribieron en el Grupo de Ayuda Mutua (GAM). Creamos un espacio para expresar nuestros sentimientos, inquietudes y testimonios. \u00a1Gracias, Eduardo, por pon\u00e9rnoslo siempre tan f\u00e1cil!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Algunas de las familias que formamos parte de la Asociaci\u00f3n nos encontramos virtualmente el s\u00e1bado. Aunque este a\u00f1o no hemos podido celebrar nuestra tradicional comida de familias, nos quisimos reunir igualmente para compartir vivencias y estima, y brindar por nosotros, por todas las familias que formamos parte de la entidad y que luchamos d\u00eda a [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":6281,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[],"class_list":["post-6504","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Un brindis por nosotros! - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/xfragil.cat\/es\/un-brindis-por-nosotros\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Un brindis por nosotros! - Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"og:description\" content=\"Algunas de las familias que formamos parte de la Asociaci\u00f3n nos encontramos virtualmente el s\u00e1bado. Aunque este a\u00f1o no hemos podido celebrar nuestra tradicional comida de familias, nos quisimos reunir igualmente para compartir vivencias y estima, y brindar por nosotros, por todas las familias que formamos parte de la entidad y que luchamos d\u00eda a [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/xfragil.cat\/es\/un-brindis-por-nosotros\/\" \/>\n<meta property=\"og:site_name\" content=\"Associaci\u00f3 Catalana S\u00edndrome X Fr\u00e0gil \u2013 Som l&#039;Associaci\u00f3 que dona suport i acompanyament a les fam\u00edlies amb fills i filles amb S\u00edndrome X Fr\u00e0gil a Catalunya\" \/>\n<meta property=\"article:published_time\" content=\"2021-06-01T11:11:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/xfragil.cat\/wp-content\/uploads\/2023\/12\/gam-web-3.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"463\" \/>\n\t<meta property=\"og:image:height\" content=\"348\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Connectalia\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Connectalia\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/\"},\"author\":{\"name\":\"Connectalia\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/#\\\/schema\\\/person\\\/c61979f7762e7304f42254d3666b3930\"},\"headline\":\"\u00a1Un brindis por nosotros!\",\"datePublished\":\"2021-06-01T11:11:44+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/\"},\"wordCount\":316,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/xfragil.cat\\\/wp-content\\\/uploads\\\/2023\\\/12\\\/gam-web-3.jpg\",\"articleSection\":[\"Noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/\",\"url\":\"https:\\\/\\\/xfragil.cat\\\/es\\\/un-brindis-por-nosotros\\\/\",\"name\":\"\u00a1Un brindis por nosotros! 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